Brain Tumor Network receives $100k grant from Rosen Foundation

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The Brain Tumor Network, a national nonprofit organization based in Ponte Vedra Beach, received a $100,000 grant from the Adam Michael Rosen Foundation.

The Orlando charity’s grant will specifically support BTN’s social services, which provide personalized nurse and social work navigation for brain tumor patients and their families and caregivers.

The grant was made in honor of Adam Michael Rosen, whom the foundation is named after.

According to a press release, Rosen had a short life due to a brain tumor, but he made sure to dedicate the time he had to improving the world around him. Rosen’s family created the foundation to carry on his legacy.

BTN’s offers these services under the mission of providing patients and families with unobstructed access to the care and treatment they need.

The services focus on assisting patients in finding second opinions from highly respected medical institutions, administering psychosocial support and providing up-to-date education about brain tumors and the treatments that exist.

“We are extremely excited and very honored to partner with Adam Michael Rosen Foundation,” BTN President Rick Sontag said in a press release. “The Rosens know firsthand the impact that a brain tumor diagnosis has on a family. Their incredible generosity will help thousands of families receive the support and services they need to get the best care possible.”

Every service offered by BTN is free and it does not accept funding from medical institutions or pharmaceutical companies, with the hope of providing unbiased services as a result.

BTN was created in 2011 and since then, more than 1,500 patients, families and caregivers have received free and personalized services.

Go to www.braintumornetwork.org for more information about BTN and the services it provides or to donate toward the cause.

The Brain Tumor Network was founded by Rick and Susan Sontag after Susan was diagnosed with a grade three astrocytoma in 1994.

She survived her battle with cancer, but never forgot the experience and the frustration it had on not just her, but her entire family as they realized how poorly understood brain tumors were by the public and the medical community.

As a result, in 2002 the Sontag Foundation was created with the mission of helping support those fighting brain tumors.

According to the BTN website, the Sontag Foundation has become one of the largest private funders towards brain cancer research, and BTN started in 2014.